Faith-Based Resources & Downloads

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sicklecelldisease.org

 For more than 50 years, Sickle Cell Disease Association  of America, Inc. and its 50+ member organizations  and affiliates have demonstrated how community based organizations can work, as partners with medi cal facilities and local and state government agencies,  to pursue national health care objectives. 

 sicklecellmedicaladvocacy.org 

 Sickle Cell Medical Advocacy was initiated by sickle  cell patients and caregivers with a primary goal of  dismantling the barriers that obstruct effective emer gency room and hospital treatment for patients with  sickle cell disease 

sickcells.org 

 Sick Cells’ mission is to elevate the voices of the sickle  cell disease community and our stories of resilience. 

cdc.gov

The Sickle Cell Data Collection Program now funds efforts in 16 states to study long-term trends in diagnosis, treatment, and healthcare access for people with sickle cell disease in the United States.

 sicklecellconsortium.org

The Sickle Cell Community consortium is comprised of sickle cell community-based organizations, patient and caregiver advocates, community partners, and medical and research advisers that applies a model of collective impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the partnerships best equipped to implement those strategies.

 discoveringmoorer2life.org

Our mission is to design essential, comprehensive programs and services that will enhance the lives of minorities who live with chronic illnesses and rare diseases. We model a person-centered approach by creating a culture of health education, health literacy, health promotion, and enhanced lifestyle.